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Hormones and Fibro

I will testify that hormones play a huge part in fibro. As some of you may know, I am currently going through hormone therapy as part of my cancer treatment, hopefully a preventive treatment at this point.  We had to choose the medicine wisely because of my fibro and my fibro is all over the place on this treatment and can I just say that it sucks.  I am only into the first 8 months of my 5 year treatment so my body better shape up because I can’t deal with this for the rest of the time.  I hate fibro as it is but hate the two together even more.  I want my life back!!!!!

My “female” hormones aren’t the only ones that suffer.  Emotionally this treatment has me all over the place. I wouldn’t be surprised if my serotonin levels are super low.

http://healthiculture.com/4-hormones-affecting-fibromyalgia-pain/

http://healthiculture.com/low-serotonin-in-fibromyalgia/

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Diet Causes Cancer?!

I have no problem admitting I have a poor diet.  I refuse to acknowledge my yeast allergy most of the time, it is so restrictive.  I live on caffeine.  The list could easily go on and on.  Although I don’t know what kind of link or how much of a link there truly is, I do believe that a good diet promotes a good immune system which can help fight cancer cells in the first place. So yes there has so be some kind of link between diet and cancer, just not sure how much.

 

https://www.livescience.com/65541-cancer-unhealthy-diets.html

Really Biden

This is not about who should or should not run for any office.  This is about someone making a promise they can’t keep in hopes of gaining favor for an office.  Face it everyone hates cancer.  Everyone wants it gone.  People for years have been trying to find a cure for it yet he promises, yes promises, to find it if he is elected.  Really.  He just set himself up for failure.  Now whatever he says will be hard to believe because of this one known lie, yes good intentions, but lie non-the-less.

 

https://www.livescience.com/65717-biden-cancer-cure.html

update

Past due for a cancer update.

I finished chemo three weeks early because the second round wasn’t working, however I had enough for them to consider it a full round.  I was admitted for 24 hours twice during chemo and before surgery, so no big scares.  Well, there was the false pregnancy scare the first time I was admitted for a GI bug.  That caused some chaos.

9/11 last year I had my surgery.  They were able to remove just the lump and some lymph nodes.  I had a post op infection a month out but it wasn’t a typical infection, then again nothing about my case was.  They drained 30-35cc/ml of clear fluid that had built up in the cavity while treating the infection.  Then again maybe it was 20-25.  Last year was crazy.

Then I had an emergency appointment when I started my radiation.  My doctor decide to add a couple weeks, a booster and lymph node treatment to be safe based on my first MRI before chemo.  That treatment wore me out.  I was exhausted everyday for those 6.5 weeks and it really started to mess with my shoulder.  I finished just before Christmas.  I saw him in Jan to check the skin and then again in June to check the skin. All clear there

Jan I started the shot half of my hormone therapy and then in Feb. I started my pill part of the treatment.  I passed my first imaging, my first mammogram and will soon have my first MRI since the treatments.  I also start cancer rehab through Livestrong at the YMCA.

Chemo plus fibro

I started chemo knowing that it was not going to be good for my fibro but I did not know how bad. I had a PT evaluation this week and for the first time ever I have problems with range of motion in my legs. Usually I am hyper mobile and can go beyond the usual range of motion and for fibro, that’s not good either, but the muscles in the back of my legs have gotten so weak they are now very tight and limiting my range of motion. Plus, the rob flares and all the muscle strength I built up in my shoulders is now gone. I am now worse than when I first started PT over a year ago after getting diagnosed with fibro. The difference now is that I know more about fibro and I know more tools to rebuild myself. I have to find a starting point and a way to navigate through chemo though.

Finally over did it

Well I made it 11 of my 20 weeks of chemo before I had a trip to the ER. Last week, instead of chemo, I had Chris take me ER. Turns out I had a viral gi bug and bladder infection. I ended up being admitted until early the next night and go back to the primary care office in a few days. Illnesses come with the territory and I did pretty good at making it 11 weeks before getting sick. Just have to make it the rest of the time.

Cancer Advocate

As many of you know, the reason we created this site was to advocate for special needs and disorders.  Once I was diagnosed with cancer, it only seemed fitting to advocate for cancer research and prevention as well. In my cancer research, I did come across us useful page for it. However, I found that Georgia is seriously lacking when it comes to advocating for cancer research and prevention. So much so that I found no state action nor event.  Yes I am working on fixing that.  I already have a few emails sent in.  I do see this as a problem since this topic should be addressed at a national and state level.  That’s my view on the subject.  Explore the site and find out ways you can help stomp out cancer once and for all.

https://www.acscan.org/about

Caregivers

I don’t know what to say for this one other than THANK YOU!  Going in and out of the doctor’s office, clinic, or hospital all the time, helping with whatever needs help, and sitting with us during the hours they mix and give us our medicine.  It would be so lonely without you.

For more information for you guys:

https://www.cancer.org/treatment/caregivers.html

Side effects

Love this resource.  Not only does it list some of the common side effects, but it gives the patient and the caregiver reasons why, what to do, how to help and when to call the doctor.  It even has a section about nutrition for during and after cancer.

One side effect I did not notice is the one where the GI track is inflamed and spasms a lot, granted my doctor said all that can really be done about that one is narcotics and anti-spasm medicine.  That is one of my more fun side effects this round of chemo. So far this round is mostly effecting me GI wise and usually the two or three days after chemo.  This past weekend I was overly tired, though. I’m not sure if it was because I didn’t rest they day I had chemo or the day after or if it was a new side effect. This is only week 3 of 12.

Last round was mostly sensory type side effects.  No, to hardly any taste buds, making everything taste different, horrible, or intense.  I would get mouth/ throat sores, but after an intense day or two, they would heal and I would be okay.  My eyes started to burn a little bit here and there, but it was manageable.  I did loose my hair, but only what was buzzed after our hair shaving party.  Other than that, it was allergies.  I ended up being put on a double dose of Benadryl and a nasal spray just to manage my allergies.

Outside of the current inflammation problem, I think the worst part of it all is how it interacts with fibromyalgia.  If you know anything about the disorder, so of the side effects of cancer are side effects of fibro also, so it is just doubling up on the side effects such as fatigue, memory problems  (chemo and fibro fog), weakness etc.  I have to have my rib cage taped up until I am healed from chemo because we can’t manipulate the bones during chemo and that is what needs to happen when a rib cage is flared.  Tip: do not have fibro days while on chemo.  It will give you another day of chemo side effects even if it is no where near time to have one.

The one side effect that no one likes to talk about is the second cancer.  I’m only 29.  I was barely 29 when I was diagnosed, so I know and understand the chances of not only the breast cancer coming back, but also another cancer may show up down the road.  I don’t live my life worrying about that, but that does change how I look at life.  Being a realistic person, I know that the chances are not high that I will see my girls marry or my grandkids.  Phoebe being 12, I may see her get married.  It means that I don’t live for the future.  I make those just in case plans, but I live for today.

So far, I would say I am very lucky when it comes to the side effects.  Many patients have to go to the hospital at least once for an infection.  Some have to stop chemo because their bodies just cannot handle the side effects.  Most people don’t even know I’m battling cancer, and that’s how I like it.  I like being able to still get out, even if that means that that days house work isn’t going to get done. If I mention it, I do so to raise awareness, not for pity.

https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects.html

Cost

Sadly, this is a part of learning and understand cancer.  I don’t share this for pity.  I share this so that people can understand that cancer takes its toll everywhere, including the finances, one area you would hope a cancer patient wouldn’t have to worry.  As much as we hate many of the changes that Tricare has introduced this year, huge raise in co-pays being the largest, we are extremely lucky to be able to get most of my cancer treatments at our local base hospital, which helps with the out-of-pocket costs.  However, our hospital does not have a radiation department and therefore, no network doctors for that treatment, meaning large co-pays here we come.  We know that it is not an option to no do radiation so we will just have to manage the finances and find a way of covering it.  Many people are not as lucky as we are.  In advocating for cancer research, we also strive to help raise awareness to cost that it takes for these families.

https://www.cancer.org/treatment/finding-and-paying-for-treatment/understanding-financial-and-legal-matters/the-cost-of-cancer-treatment.html

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